Latino Community Education Tool on Hereditary Breast Cancer

Institution: Latinas Contra Cancer
Investigator(s): Ysabel Duron,  - Laura Fejerman, Ph.D. -
Award Cycle: 2017 (Cycle 23) Grant #: 23AB-1200 Award: $5,954
Award Type: CRC Pilot Award
Research Priorities
Community Impact of Breast Cancer>Sociocultural, Behavioral, and Psychological Issues: the human side

This is a collaboration with: 23AB-1201 -

Final Report (2020)

Breast cancer is the most common cancer in Latinas and the leading cause of cancer death. Latinas tend to be diagnosed later, have poorer survival, and receive poorer quality care throughout the cancer care continuum than Non-Latina White women. Multiple studies have shown that U.S. Latinos are interested in learning about hereditary breast cancer. However, the low educational level and lack of access to information and resources of many of the members of this community are barriers to self-education. We proposed to develop an hereditary breast cancer educational program based on the hypothesis that community-based organizations are ideally positioned to lead the development of educational materials for the community and serve as centers for the successful training of community health educators (Promotores) and as hosts for community education events. We planned to adapt and extend a previously developed and implemented hereditary breast cancer education and screening program for the African American community in the Bay Area.

Our specific aims were to adapt and develop 1) a hereditary breast cancer risk education curriculum for Promotores that would include a text (Module) and an in-person class to be delivered by a Hispanic/Latino scientist, b) an annotated didactic session to be delivered by Promotoras (a step-by-step protocol for class delivery) and a brochure on the topic of hereditary breast cancer risk to educate the community and identify high-risk individuals.

During the first 5-months of the project we focused on the development of a Guide about hereditary breast cancer for Promotoras (the Module). The advantage of having the Guide is that it can serve as easily accessible support material for the Promotores. We held two community advisory board meetings and 1 focus group to develop the Guide for Promotores about hereditary breast cancer.

The focus of the Guide is “Mariana’s story”. This is the story of a Latina woman who discovers a lump on her breast. The story navigates the reader through different concepts related to breast cancer first, and as Mariana’s story develops, to topics related to hereditary breast cancer (which is the focus of the Guide). In addition to Mariana’s story, the Guide has two levels of information. One is based on simple and short definitions that help understand what Mariana is telling us in her story. The second level is more detailed, and aims to provide the Promotora with a more comprehensive understanding of hereditary breast cancer and genetics. The Guide was extremely well received.>p/>

Our project ended earlier than planned (after 5 months).

Next steps: We will use the rich feedback that we obtained during our project and make some modifications to the Guide. We will then start developing a PowerPoint presentation that will cover the same concepts as the Guide and used its figures, but will be based on a more interactive learning process and include at least one hands on activity to help with the genetics concepts. We will informally discuss the PowerPoint and class structure with our CAB while we develop the materials. We will use qualitative methods to gather additional feedback on the updated version of the Guide and also the PowerPoint class materials.